Special Session: To the Hospital and Beyond: A Special Program on Child Life and Dialysis

To The Hospital and Beyond: A Special Program on Child Life and Dialysis

Program Description:  Child Life Specialists (CLS) are members of the health care team who provide support for patients and their family members throughout their hospital journey. Their services and support vary depending on the needs of each individual patient and family that they encounter. CLS have special expertise to educate and work alongside the interdisciplinary team.  Some of their activities include utilizing therapeutic play to allow the child to understand their time in the hospital system,  preparing patients for what they are going to experience in the hospital to promote positive coping, assisting with pain management techniques and how to empower a patient to do difficult tasks in addition to supporting the family throughout this journey.  All these interactions are guided by the CLS’s knowledge of child development.

The goal of this special program is to provide a forum to share information of the roles of Child Life Specialists (CLS) in Nephrology with fellow Nephrology Practitioners and foster an exchange of ideas on how this group of professionals can best support and serve the unique patient population they care for.

Topics and Presentations:

10:00    Welcome and Introductions – Robin Davis, CCLS and Amanda Porter, MS, CCLS

10:00    Quality of Life/Psychosocial Challenges Affecting Chronic Dialysis Patients – Cortney Zimmerman, PhD

11:00    Supporting Patients During Common Dialysis Procedures – Amanda Porter, MS, CCLS

12:00    Break

1:00     Educating and Encouraging Patients to Become More Engaged in Maintaining Nutritional Needs – Jessica Tower, MS, RD, LD and Rachel Finn, CMH Chef

2:00     Transition from CKD to Dialysis to Transplant: Case-based Presentations – Amanda Porter, MS, CCLS and Robin Davis, MS, CCLS

3:00     Dialysis: The Patient Perspective and Experience – Robin Davis, CCLS

4:00     Interactive Discussion

5:00     Adjourn

Session 4 

Session 4

4:00-5:00 pm

Moderators: Alicia Neu, MD and Theresa Mottes, MSN, APRN, CPNP/AC

4:00     Major Infectious Complications – Mahima Keswani, MD

4:30     Renal Anemia: The Basics – Meredith Atkinson, MD

5:00      Adjourn

Nursing Breakout I: (Nursing Round Table Discussion)

Nursing Breakout I: (Nursing Round Table Discussion)

2:30-3:45 pm

Moderator: Brandy Begin, BSN, MBAc. RN, CNN

2:30      Crit Line Update – Jessica Geer, MSN, C-PNP, CNN-NP, RN

2:55      Child Life Overview – Kirsten Cotton-Sheldon, CCLS, CTRS

3:20      Bowel Management – Kathleen Mallett, MSN, APRN, FNP-C, CNN-NP

3:45      Break

Session 3:  Breakout Sessions I

Session 3:  Breakout Sessions I

2:30-3:45 pm 

Fellows Case Conference – Stump the Consultants

Moderator: John Mahan, MD

Consultants: Jordan Symons, MD, Meredith Atkinson, MD, Cherry Mammen, MD, Annabelle Chua, MD


Sarah Couser, MD, Cincinnati Childrens’ Hospital, Cincinnati, Ohio

Abdulaziz Bahassan, MD, The Hospital for Sick Children, Toronto, Ontario, Canada

Kimmy Vuong, MD, Texas Childrens’ Hospital, Houston, Texas

Session 2 

Session 2

12:30-2:00 pm

Moderator: Steven Alexander, MD and Amy Nau, MBA, MSN, RN, CNN, NE-BC

12:30    Cardiovascular Complications – Franz Schaefer, MD

1:00     Pediatric Dialysis Nutrition Guidelines – Kirsten McFadyen, RD

1:30     Growth and Growth Hormone Therapy – Jens Drube, MD

2:00     Break

Session 1

9:55 am Welcome – Steven Alexander, MD 

Session 1

10:00 am-12:00 pm

Moderator: Bradley Warady, MD and Jessica Geer, MSN, C-PNP, CNN-NP, RN

10:00    Peritoneal and Vascular Access – Mary Brandt, MD

10:30    Physiology of Blood Purification – Jordan Symons, MD

11:00    PD Prescription & Adequacy Monitoring – Annabelle Chua, MD

11:30    HD Prescription & Adequacy Monitoring – Cherry Mammen, MD

12:00    Break

Optimizing Home Dialysis Management and Patient Retention

Optimizing Home Dialysis Management and Patient Retention

4:00-6:00 pm

Moderator: LaVonne Burrows, MSN, RN

4:00     Providing the Right Prescription – Brent Miller, MD

4:30     Implementing a Consistent and Flexible Training Program for Patients and Care Partners – Lisa Koester, MSN, RN

5:00     Interdisciplinary Team Participation in Managing Patients – Frank O’Brien, MD

5:30     Alleviating Patient and Care Partner Burden: Experience from the First US-based Staff Assisted Program – Wael Hussein, MD

6:00     Adjourn

Educating Patients and Care Providers

Educating Patients and Care Providers


Moderator: Graham Abra, MD

1:30     Advancing American Kidney Health Improve Engagement between Patients and Providers – Eugene Lin, MD

2:00     National Kidney Disease Education Program (NKDE) and Alternative Models: What Works Best? – Vanessa Ratcliff, FNP-BC, CNN

2:30     Kidney Life Plan: An Effective Tool in Making the Right Decisions – Dori Schatell, MS

3:00     Home Dialysis Project ECHO Program – Christopher Chan, MD

3:30     Break

Key Components to a Successful Home Program

Key Components to a Successful Home Program

11:30-1:00 pm

Moderator: Ramesh Khanna, MD

11:30    Integrating Urgent Start PD and Support Team: Making it Work – Shani Shastri, MD

12:10    Remote Patient Management – Compliance Management – Vikram Aggarwal, MD

12:50    Discussion

1:00     Break